Neuroscience Community Participation Resources
In It Together: Community-Based Research Guidelines for Communities and Higher Education: “These guidelines, developed by a community-campus collective, offer advice for both community-based and campus-based people who want to do collaborative research.”
Community-Engaged Research: A Quick-Start Guide for Researchers: “The quick-start guide aims to “help academic researchers develop effective and mutually-satisfying collaborations with community-based organizations, clinicians or other community stakeholders.”
Community Engagement Studio 2.0: “Introduces the community engagement studio model, which is a “way for researchers to get community or patient input on the development, implementation or dissemination of a research project.”
Toolkit for Developing Community Partnerships: “This guide is intended to be a resource for researchers, health care providers and the community who are interested in conducting community-engaged research.”
Bibliography on Community-Oriented Neuroscience Research
Bagot, K. S. & Öngür, D. (2024). Advancing Diversity, Equity, and Inclusion at JAMA Psychiatry. JAMA Psychiatry, 81(7), 645. https://doi.org/10.1001/jamapsychiatry.2024.1152
Boyle, P. (2021). Clinical Trials Seek to Fix Their Lack of Racial Mix. AAMC. https://www.aamc.org/news/clinical-trials-seek-fix-their-lack-racial-mix
Eckstrand, K. L., Singh, M. K. & Ajilore, O. (2022). Diversity, Equity, and Inclusivity in Biological Psychiatry Research. Biological Psychiatry: Cognitive Neuroscience and Neuroimaging, 7(12), 1195-1197. https://doi.org/10.1016/j.bpsc.2022.09.009
Girolamo, T., Parker, T. C. & Eigsti, I.-M. (2022). Incorporating Dis/Ability Studies and Critical Race Theory to Combat Systematic Exclusion of Black, Indigenous, and People of Color in Clinical Neuroscience. Frontiers in Neuroscience, 16. https://doi.org/10.3389/fnins.2022.988092
Green, K. H., Van De Groep, I. H., Te Brinke, L. W., van der Cruijsen, R., van Rossenberg, F. & El Marroun, H. (2022). A Perspective on Enhancing Representative Samples in Developmental Human Neuroscience: Connecting Science to Society. Frontiers in Integrative Neuroscience, 16. https://doi.org/10.3389/fnint.2022.981657
Hemley, H., Ison, J. M., Reynolds, M., Pham, T. & Jackson, J. D. (2024). A Novel Approach to Research Engagement: Developing a Targeted Theory of Change with Black and African-American Stakeholders. Journal of Clinical and Translational Science, 8(1), e143. https://doi.org/10.1017/cts.2024.610
Kwasa, J., Peterson, H. M., Karrobi, K., Jones, L., Parker, T., Nickerson, N. & Wood, S. (2023). Corrigendum: Demographic Reporting and Phenotypic Exclusion in fNIRS. Frontiers in Neuroscience, 17, 1331375. https://doi.org/10.3389/fnins.2023.1331375
La Scala, S., Mullins, J. L., Firat, R. B. & Michalska, K. J. (2023). Equity, Diversity, and Inclusion in Developmental Neuroscience: Practical Lessons from Community-based Participatory Research. Frontiers in Integrative Neuroscience, 16. https://doi.org/10.3389/fnint.2022.1007249
Louis, C. C., Webster, C. T., Gloe, L. M., & Moser, J. S. (2022). Hair Me Out: Highlighting Systematic Exclusion in Psychophysiological Methods and Recommendations to Increase Inclusion. Frontiers in Human Neuroscience, 16. https://doi.org/10.3389/fnhum.2022.1058953
Murray, D.S. (2023). Neuroscience Has to Grapple with a Long Legacy of Racism if It Wants to Move Into the Future. STAT. https://www.statnews.com/2023/11/29/racism-in-neuroscience-brain-computer-interfaces-neurotechnology-research/
Farisco, M. (2023) Neuroethics and Cultural Diversity. WILEY. https://doi.org/10.1002/9781394257522
Parker, T. C., & Ricard, J. A. (2022). Structural Racism in Neuroimaging: Perspectives and Solutions. The Lancet. Psychiatry, 9(5), e22. https://doi.org/10.1016/S2215-0366(22)00079-7
Ricard, J.A., Parker, T.C., Dhamala, E. Kwasa, J., Allsop, A., Holmes & A.J. (2023). Confronting Racially Exclusionary Practices in the Acquisition and Analyses of Neuroimaging Data. Nature Neuroscience, 26, 4–11 https://doi.org/10.1038/s41593-022-01218-y
Sanders, L. (2020). New Electrodes Can Better Capture Brain Waves of People with Natural Hair. ScienceNews. https://www.sciencenews.org/article/electrodes-brain-waves-eeg-black-african-american-natural-hair
Smith, N. A., Helmreich, D. L., Adamantidis, A., Bovolenta, P., Foxe, J. J., Smith, Y. & Vaidya, V. A. (2022). "Diversity Matters Series": The Black In Neuro Movement. The European Journal of Neuroscience, 55(2), 343–349. https://doi.org/10.1111/ejn.15574
Sullivan, C.R.P., Henry, A., Lehman, J. et al. Rewriting the Script: The Need for Effective Education to Address Racial Disparities in Transcranial Magnetic Stimulation Uptake in BIPOC Communities. Neuroethics, 17, 8 (2024). https://doi.org/10.1007/s12152-024-09542-9
Wassenaar, E. B. & Van den Brand, J. G. (2005). Reliability of Near-infrared Spectroscopy in People with Dark Skin Pigmentation. Journal of Clinical Monitoring and Computing, 19(3), 195–199. https://doi.org/10.1007/s10877-005-1655-0
Webb, E.K., Etter, J.A. & Kwasa, J.A. (2022). Addressing Racial and Phenotypic Bias in Human Neuroscience Methods. Nature Neuroscience, 25, 410–414 https://doi.org/10.1038/s41593-022-01046-0
Webb, E. K., Cardenas-Iniguez, C. & Douglas, R. (2022). Radically Reframing Studies on Neurobiology and Socioeconomic Circumstances: A Call for Social Justice-oriented Neuroscience. Frontiers in Integrative Neuroscience, 16. https://doi.org/10.3389/fnint.2022.958545